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Give and get support around quitting

BHnCA
Member

SLIP FEELS LIKE I WAS AMBUSHED

I slipped today. Before anybody tries convincing me my reason is based on a flimsy excuse, I would be inclined to challenge them.  I’ve been doing good in my first 7 days of not smoking. I even got thru the first most difficult 3 days and was finally feeling like I can DO this. Going off the patches made the effort a little more difficult, but I was sticking with it. In the last 3 nights, though, I’ve been woke up twice from sound sleep with severe headaches caused from occipital neuralgia (diagnosed 2 years ago) which was treated successfully with gabapentin.  I since ran out of that medication, but was told the 6 month dose was probably enough to settle the nerves down.  Now the nerve/s is/are apparently ticked off, again, and with a vengeance. When these headaches strike it feels like a meat cleaver has been buried in the top of my head.  It’s an intense, icy, stinging pain that gradually radiates acrossed my head. My eyes water and it takes everything I have to just breathe through the pain with an ice bag on top of my head, and wait until it starts settling down, then I have a mild headache for the following 24 hours. Sometimes it’s so bad it feels like the top of my head had been ripped open and my immediate reflex is to grab my head to hold it together, because it feels like ice cold air is rushing into my skull.  NOT fun.  I’ve had a full series of MRI’s and CT scans before to rule out things like a stroke; occipital neuralgia is the confirmed diagnosis. As if the fear of continuing to have these fierce and unexpected headaches isn’t enough, another problem arose today - GETTING a refill for the medication that treats the cause.  And it’s not because I don’t have excellent insurance.

This afternoon I discovered that GETTING a refill is next to impossible, because the neurologist who prescribed it is no longer within my hospital system. A new neurologist was assigned to me awhile back and my first appointment was to have been 2 months ago. They changed that appointment to May 24th, though and, last week they called, again, and pushed it out even further, to June 22nd. Meanwhile the headaches had started coming back, so I requested them to, at least, order me a refill till I could SEE the new doctor. The nurse said “no problem, we commonly do that, especially when we are the ones rescheduling appointments.”  What a relief!  Fast forward to May 21st, when the pharmacy called and said the new doctor would NOT order a refill after all. So I called the neurologist’s office for help. They were no help at all, because the new doctor wasn’t the one who originally ordered gabapentin for me. I get it, but when I asked what I should do under the circumstances, the receptionist told me “call you’re primary doctor, that’s what she’s for.”  

That was no help, either, because my doctor is on vacation till the end of a June and nobody will order me a refill without seeing me first, plus I was told a neurologist would have to order gabapentin, anyway, vs my primary doctor (an internist). I get that, too, so I asked if I they have a neurologist working in Urgent Care Clinic? She didn’t think so, but would check, but I already know the ONLY neurologist who works at that hospital has already pushed my appointment out to the end ofJune.  I even told them I am so afraid of the headaches that I am willing to drive to another neurologist within 100 miles if they could just get me in, but that plea was to no avail either.  So I wait and just pray I don’t have any more headaches in the meantime. Not one of my better days.

So yeah, I slipped. And even when I did I knew damn well it’s not going to change anything I’m experiencing at this moment, but I made the choice to give in because I was a train wreck and all I wanted was SOMETHING that would relieve my frustration and tears even if it was only a temporary fix.  I’ll get back to my quit, I swear. I just don’t think it’s going to be today is all.

82 Replies
Lisaml
Member

I just read where you said someone had prescribed enough for 14 days. I’m sorry! I hadn’t seen that earlier 😉 I’m glad for that!!!!! 

Hope youre feeling better today, and get right back to your quit. You have a lot of people HERE who care about you!!! Xox 

Legend
Member

I’m sorry to hear of all of your problems you are having. I do understand how you feel with the pain I also have occipital neuralgia and it’s pretty bad. I go to a pain clinic instead of a neurologist they specialize in this kind of pain. The pain clinics have many different options that can help you it just depends how much money you have and what you want to try. Pain clinics just don’t give you a pill to make it all better they can give you more options depending on what is wrong with you. In the past I just wanted to give up and smoke because of frustration of constant pain that feels like I am going to go insane but I then think I don’t want to go back to square one and have to go through withdrawal again from cigarettes. It’s a choice I make for me and I find other ways to cope with the frustration I have. You’re probably wondering what the heck I do to cope with all of this frustration I have. Well I got into mediation you can find guided meditation cd’s on amazon and they have a lot to choose from. A friend of mine is into mediation and got me hooked on it and it does help me. I remember very well still what it feels like to relapse and to have to go smoke at odd times of the night just to feel less frustrated and I never want to go back to that but that is my choice I made for myself and no matter what I want to keep that promise to myself. I also deal with upper and lower spinal problems that I have had surgery on and now have more problems from that. I deal with two rips in my shoulder that I don’t have money to fix yet and just turning over in bed is a real challenge for me so learning how to deal with my pain was a really big step for me to overcome all of my frustration. I hope you can find someone that can give you more options with your pain. You can do this keep telling yourself you can. I hope you have a better day tomorrow and sleep well.   

BHnCA
Member

Thank you for your response. I’m so sorry for the pain you must deal with. It’s never easy. I really am interested in finding out if a pain clinic exists at my medical facility, because I’m a believer in the power of therapy and finding better ways to manage our ailments. Until your message it never occurred to me that there might be exercises for occipital neuralgia!  I already practice mindful exercises and, especially Jacobson Relaxation Response techniques for getting to sleep. Then my favorite - gratitude awareness. The only problem I have with the latter is that, if I think of especially joyful and funny things when going to sleep - like with my grand kids - I start laughing and can’t get to sleep  .  To me, our choices and the way we think have a lot to do with helping us feel better overall. Learning how to do it well takes practice and, as I know from today’s slip, the lessons keep coming. Thank you for your encouragement.

Barbscloud
Member

This pretty much sucks.  Dealing with the medical merry-go-round is very frustrating.  Sorry lost your quit, but don't beat yourself up.  Severe pain is enough to drive anyone over the edge.  Try to set a new quit date soon.  Unfortunately, when we wait to long, it turns into years.  It was good to post and get this out of your system.  Hopefully there won't be a next time, but try to learn from this experience.

BHnCA
Member

I re-started my quit this morning, because I REALLY don't want to go thru the first 3 days, again, that I'd survived last week. 

what really helped me very early in my quit was going to some of the members' profiles and going back to the very start of their quits and read over what they went through.  Kind of reassured me that I wasn't crazy and a prelude of things that may come.pastedImage_1.png

Use the sort by date created: oldest first under the content tab and you'll go back in time to follow their journeys.  I found it very enlightening

BHnCA
Member

THANK YOU! I'm going to go through them right now.

Roller831
Member

Keep trying.  Keep coming back here.  Perhaps you may find https://excommunity.becomeanex.org/groups/best-of-ex/blog/2017/09/20/a-slip-is-not-a-fall?sr=search&...‌ helpful to read.  I am not in your shoes so really cannot offer anything on pain or headaches or your specific circumstances, but what I can say is re-doing Day 1 is the single thing that keeps me from smoking even one puff.  I don't ever want to go through that gain since THAT was so painful for me! 

We are here to support you!  

Roller

Mandolinrain
Member

I’ll be praying for you and hope you get pain relief very soon. Please do get back to your quit soon. I know it’s hard. I failed many times. We care. I care. You can do this

Giulia
Member

You're back on the horse.  That all that really matters.  As I said on another blog of yours, "There are many who have tried and failed in the past,"  I know well that most people don't make it the first, second or third time.  I didn't.  My point is just - that in order to become a long-term quitter you have to finally get to the point of staying true to the commitment "no matter what."  Whether it's your first attempt or 10th.  Having been here since the site's inception and having seen what makes for a successful quit and what doesn't, when I read something like, "I’ll get back to my quit, I swear.   I just don’t think it’s going to be today is all."  That sends up a red flag in my mind.  Others have said something similar and then gone on to smoke for the next X number of years.  I'm glad you aren't following in their footsteps.

"mistakes are lessons looking for a place to happen so we can become better than we were."   Great quote!