Update on Ellen...the OTHER one

Blog Post created by elvan on Jul 23, 2017

Thank you all for your beautiful comments and your prayers.  I tried really hard to let go last night and I ended up crying myself to sleep.  Ellen is very active, she runs every day, she is a dancer, she eats the most well balanced diet of anyone I know, she does not smoke or drink, she wants to be a nurse...she wants to work in oncology.  I am so proud of her and I love her so much.  I cannot stand the thought of her in pain...I hate to think of ANYONE in pain.  I really do not know how they are treating lupus these days, I am sure it is much more aggressively than back when I worked.  My brother in law is still checking into doctors, my sister said he is really depressed because most of the people he knows have retired.  I told my daughter that when I told my son that anyone I might know would be retired...he responded..."or dead."  I had to laugh because he is probably right.  She had been told that she had RA when she was tested at school (she is transferring this year to Buffalo).  All of the autoimmune diseases seem to go hand in hand.  She is young and strong and very determined, if anyone can handle this, it is her.  I will do all of the research I can and my sister's friend sent me the web address for support for people with lupus.  I know there are varying degrees and I can only hope that she can get it under control and KEEP it that way.  One thing that causes flares is the sun.  She has to protect herself.  Again, thank you for all of the support and prayers and love, I was a complete puddle last night, I am getting myself together.  My pain is wicked and I am sure it is related to stress.   It's so obnoxious.  


Another hot and humid day...I am going to try to attach a picture of my granddaughter...one of the things I read last night is that lupus can cause hair loss...she CERTAINLY does not have that.  


Thank you again, each and every one of you. Much love from the much older Ellen.