The Invisible Disability

Discussion created by Thomas3.20.2010 on Feb 21, 2017
Latest reply on Feb 28, 2017 by Chuck_Quit_2-20-2011

Do you struggle with Folks understanding your disease and the restrictions it puts on you?


I battle with Family, Work, even as a Customer. One reason I research so much is to find simple ways to say, "I may look fine but I'm not! I need you to accommodate my limitations in the following ways..."


COPD awareness even among Doctors is so minimal! It's no wonder that the guy on the street can't understand! In some ways it's even harder until you do have oxygen therapy in that they can see that! 


Some days I just want to say, Hey, live 24 hours in my body and then see what you can do! My pulmonologist said that if a person with no COPD had my lung capacity one day they would be in the hospital!


That's a good one! Try it every day!