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75 Feet

That's how far my Oxygen cord runs. 

So if I want to go upstairs I can either get my Concentrator upstairs or put on my portable. I have 2 portables - one has 3 hours of O2 and one has 1 1/2 hours. And obviously if I leave the house I need my tanks - probably both just in case. 

This has caused a huge change in my lifestyle. It may be temporary or it may not. I saw my pulmonologist yesterday and he says no crystal balls - no predictions as to if and/or when I may stabilize and come off the O2 or at least be nighttime only. 

I am in the process of applying for disability accommodation at work and medical leave until I can at least stabilize with oxygen.

Overnight I went from moderate COPD to Severe. Now I am making inquiries into what I can do to adjust whether I keep working or not. Having been employed for less than one Year at Comcast makes my options more limited.

I am not anxious!

I have turned my worries over to the Lord and will take it one day at a time!

Any experiences or suggestions would be very much appreciated. 

I am attacking this change like I do with almost everything - research, research, research!

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38 Replies
pir8fan
Member

Knee mail going up for you my friend! Like Giulia, I am wondering where the sepsis came from! Did you have an invasive procedure?

i do know how serious sepsis is! I suspect they have started you on vancomycin! That is a nasty antibiotic! But it is effective! When I had sepsis, it seemed that everyone in the hospital wanted to tell me that I could die from it! My answer to them was "I know this is serious, but it can't kill me, because you don't know how many people are praying for me!" You my friend have a larger army of support than I did! Stay calm, and let the doctors and the Lord do their work! 

You are in my thoughts and prayers!!    Tommy

c2q
Member

Roller831
Member

Thomas - Your story really resonates with me as I could have written the exact same thing about my mom.  She had COPD and it went from moderate to severe quickly.  I remember her concentrator and the long tubing to allow her to roam around the bottom floor of our house.  She also had a concentrator upstairs.  We had a chair lift to get her from downstairs to upstairs.  Please take care of yourself and listen to the doctors.  I will keep you in my prayers.  

Posamari
Member

Did not realize you were on oxygen. Prayers and hugs for you, you're an integral part of this site. Heal soon friend.

Barbara145
Member

Praying for you so much.  Answering Tommy's question to where the sepsis came from. It is most likely coming from the infection in the lungs.    

The outcome is on this Blog:

/blogs/BonnieBee.quit.2.8.15-blog/2017/12/11/our-thomas?sr=search&searchId=af9d1c11-5a60-402f-80b7-2...

Thank You ALL for your Love and Support!

Tomorrow is tomorrow.

indingrl
Member

I love you 

Iamkfaz
Member

Thomas,  I am sending you all of my thoughts, prays and positive energy to help you through this difficult time.

ranjitthewolf
Member

These ******* cancer sticks are ruining peoples lives. They should just ban this ****.